I first heard of Jen when she began work on a documentary about ME. Her TED Talk is newly up and has been making the rounds. She is a fantastic advocate and speaker. If you haven’t seen it yet, this is definitely one to share.
I have to admit, I didn’t watch the video for a few days in case it was too emotional. It is emotional (especially for those of you who have been severe, or if, like me, you recognise some of the people in the photos in the talk to show just how bad ME can be) but it is so good to see this message getting out, and in such a moving and intelligent way.
People like Jen are change-makers, and we need change so bad.
What happens when you have a disease doctors can’t diagnose
Five years ago, TED Fellow Jennifer Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she’s encountered in seeking treatment for her condition, whose root causes and physical effects we don’t fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.
You can also read an interview with her here.